This ‘Diabetes Research’ blog is initially about the seed-project ‘Information Avoidance and diabetes‘. This project is an initial investigation of how and why people with diabetes might not seek or engage with information about their diabetes. More projects should follow, and find homes on this blog.
Bruce has published a long post about the presentations he attended at #AECIST20. It’s here: https://bruceryan.info/2020/06/20/memories-of-aecist20-2.
if you want to go straight to individual presentations, follow these links:
- 8 May
- Health literacy in practice in Ireland
- Taking health information behaviour into account in user-centered design of e-health services – key findings from an ongoing research project
- Girls’ Positions and Authoritative Information Sources in Finnish Online Discourses on the HPV Vaccine
- Teaching Online Health Literacy at the University Level (poster)
- Information avoidance and diabetes: a preliminary empirical study (poster)
- 9 May
- Health (mis)information behaviour in the Covid-19 era
- Usage of social media in finding information related COVID-19
- Correcting health misinformation online: Collaborative crosschecking
- How can the Government tackle an Infodemic during a Pandemic? (poster)
- #COVID-19 Misinformation: Saudi Arabia as a Use Case (poster)
- 10 May
What we are doing and why we are doing it
Where it all began
During a presentation by Professor Gunilla Widen on her information behaviour research, she mentioned the concept of ‘information avoidance’. My major medical condition, Type 1 diabetes, calls for a lot of data– and information-gathering by patients. Diabetes patients may need to gather data several times a day, and decide on large parts of their own treatment. But we all know that people aren’t always rational ‘information-consumers’. (Gunilla made this point very strongly.)
I began to wonder whether some people with diabetes avoid information about their conditions. If this happens, then it would be important to understand how prevalent such behaviour is. On a practical note, it would be useful to find whether and how people can be nudged into engaging with information to achieve better healthcare outcomes. I saw these questions as a possible opportunity to add to both healthcare and to information science theory.